I will never forget July 2, 2010.... Lauren had not eaten all day. For the next two weeks I was lucky to get Lauren to drink twelve ounces of formula in a twenty-four hour day. I spoke to our Occupation Therapist, Miss Jami, about it and she told me to take Lauren in to the ER immediately for risk of dehydration. As soon as we got there, they admitted her and began running IV fluids.
While in the hospital, they ran a chest x-ray to make sure everything was ok. They did a swallow study, which she somehow passed. I still to this day believe she should have failed that. They did an MRI and discovered that she has a thin corpus collosum. And they placed an NG feeding tube. She was then diagnosed with Failure To Thrive......
That hospital visit changed my life ~ we followed up with our Pediatrician on the following Monday after discharge and she informed me that I needed to file for Disability (SSI) for Miss Lauren but never really elaborated and/or explained why. She also told me that it would not be in my best interest to go back to work yet. She said that Lauren needed me and required a lot of care and that it was best for me to be at home with her. The hospital even sent out a nurse to our home once a week to keep an eye on her.
Before this first admit to the hospital, I had been doing my own research for a possible diagnosis for what was going on with my child. Several people had mentioned Cerebral Palsy to me. The more reading I did on that topic, the more it began to make sense. After this admit, I heard those two words more and more from different people.
No comments:
Post a Comment