Since that first hospital stay in July, I have been begging people to listen to me when it comes to Lauren. I have known since she was two months old that she was not your "average" baby. I did finally get one group of doctors to listen to me in August. We were admitted to CMH for "seizure like activity" only to find out that my baby was having at least three seizures per day. So we now have added a Neurologist to our list of physicians. She continued to have trouble eating, if I was lucky enough to get her to take anything so we placed a G-Tube in September to supplement the formula she wasn't taking in by mouth.
Skip ahead to ten months old.... we now know that she has two heart murmurs, three types of seizures, acid reflux, stage three kidney reflux, Failure To Thrive, Oral Dysphagia, muscle tone issues, developmental delays, possible hearing problems, and a thin corpus collasum. As if that's not enough, she cries all the time as if she's in pain. She's never like being swaddled, but now that she's eleven months old, that's the one thing I've found that will calm her down at night. I have fought like hell to get these things noticed. My eleven month old baby girl sees more doctors in one month than I have seen in my lifetime. It breaks my heart! We still have no diagnosis. They just keep telling me she is "Atypical" so they need more time to figure it all out. Her geneticist says that everything should tie into one genetic disorder.
It's not all bad.... she does crawl and cruise along the coffee table. We've taught her to wave bye-bye and say "HI" or "Ma Ma". She's so beautiful and when she is happy, she laughs and plays with her sissy. She likes to play with her toys, as long as they light up and play music. :) Her home health nurse, Miss Denise, works really hard with her to keep her going, especially when I begin to get stressed.
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